Module on Citizen Science Ethics
Authors
- Birutė Liekė, Office of the Ombudsperson for Academic Ethics and Procedures of the Republic of Lithuania, Lithuania
Main topics
- Citizen science: its origins, concepts
- Research Ethics and Research Integrity in Citizen Science
Training objectives
After completing this module participants will:
- Be able to define citizen science: its origins, concepts
- Be able to understand power balance and conflict of interest
- Be able to identify and recognise research that needs an institutional oversight and informed consent
- Be able to apply an optimal technological solution, for data collection issues, and improper data management
- Be able to understand and apply emerging issues in intellectual property rights and ethical issues when publishing resul
Target group
Master’s students, doctoral students and supervisors
Tools and methods
Module consists of literature, videos, quizzes, and vignettes. Module could be study individually, in pairs, in groups.
Duration
Total of 5 hours divided into ten 30 minute sessions.
Equipment
Students need access to a computer to watch the video and do the quizzes and the vignettes.
Sessions
Session 1: Citizen science (CS): its origins, conceptsSession 2: Research ethics and integrity in CS - institutional oversightSession 3: Research ethics and integrity in CS - power balanceSession 4: Research ethics and integrity in CS - conflict of interestSession 5: Research ethics and integrity in CS - informed consentSession 6: Research ethics and integrity in CS - privacy and confidentialitySession 7: Research ethics and integrity in CS - use of technologySession 8: Research ethics and integrity in CS - data management and verification of findingsSession 9: Research ethics and integrity in CS - intellectual propertySession 10: Research ethics and integrity in CS - ethical publishing
Financed through the Erasmus+ Strategic Partnership project Bridging Integrity in Higher Education, Business and Society (BRIDGE, 2020-1-SE01-KA203-077973) .
Session 1
Citizen science: its origins, concepts
Objectives
- Be able to describe citizen science from historical perspective
- Be able recognize classification of citizen science
Methods
Work in pairs, individual work, discussions.
Timing
30 minutes
Materials
- Literature:
-
- Miller-Rushing A., Richard Primack R., and Rick Bonney R. (2012) The history of public participation in ecological research. Frontiers in Ecology and the Environment; 10(6): 285–290, doi:10.1890/110278
- Kobori H., Dickinson J. L., Washitani I., Sakurai R., Amano T., Komatsu N., Kitamura W., Takagawa S., Koyama K., Ogawara T., A. J.Miller-Rushing A. J (2016) Citizen science: a new approach to advance ecology, education, and conservation. Ecological Research 31: 1–19 DOI 10.1007/s11284-015-1314-y
-
- Video:
- Game:
-
- Citizen Science Challenge: https://wordwall.net/play/59048/680/467
-
Quiz for session 1
Useful resources
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
- Bonney R., Cooper C.B., Dickinson L., Kelling S., Phillips T., Rosenberg K.V. Shirk J (2009) Citizen science: a developing tool for expanding science knowledge and scientific literacy. BioScience, 59 (11) 977-984
- Science Animated, Improving Your Local Area: How can we work together to make Birmingham more age-friendly?
- The National Academies of Sciences, Engineering, and Medicine, Learning Through Citizen Science: Enhancing Opportunities by Design
Session 2
Research Ethics and Research Integrity in Citizen Science: Institutional oversight
Objectives
- Be able to identify and recognise research that needs to pass an institutional oversight
- Be able to recognise and understand if research design requires institutional oversight
Methods
Work in pairs, individual work, discussions, gamified cases.
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Citizen science (CS) research that involves human subjects should undergo ethical review. This also includes CS research that involves personally-identifiable information.
-
- Guideline #2
-
- CS research should be considered on a country-by-country basis and in legal terms.
- Various ethical and legal standards that outline ethical principles for research with human subjects emphasise the need for an institutional review board (IRB) or other independent external oversight body, stressing that the research protocol must be submitted for consideration by an ethics committee (interchangeable with IRB) before the study begins (e.g. World Medical Association 2000). This is also applicable to CS projects that involve humans, not only as co-researchers, but also as research subjects. In these cases, the responsibility to obtain ethical approval should be assumed by professional researchers. As stated in the Declaration of Helsinki, the ethics committee in this case must be independent of the researchers, the sponsors or other undue interference. Such a committee should also take into consideration the laws and regulations of the country or countries where the research will be conducted (World Medical Association 2000). While historically associated with the medical sciences, it is now frequently acknowledged that social sciences and humanities should also undergo independent ethical reviews of the sort proposed in the Helsinki Declaration (Jennings 2012, Hunter 2018, Hansson 2020).
- Although the details of specific systems for ethical review (oversight) vary between countries, the aim of any such system for regulating human subject research is to protect the rights and well-being of research subjects (Emanuel et al. 2000, Cooper et al. 2019) and co-researchers.
- Cooper et al. (2019) voiced some scepticism concerning expanding the current practice of IRBs to include not only research with traditional human subjects, but also the types of CS projects in which citizen scientists participate in research by providing personally-identifiable information, such as observations, photos, sensor data and geolocation data. Ethical reviews should include a data management plan covering the following topics: general information, data description (e.g. what will be collected and reused), documentation, data quality (e.g. how data reliability and validity will be ensured), data storage and backup during the research process, data sharing and long-term preservation (e.g. what data will be open), data management responsibilities etc. The FAIR (i.e. findable, accessible, interoperable, reusable) principles are to be considered in the data handling and data management plan (Science Europe 2021). Given the sensitivity of personally-identifiable information in CS projects, IRBs should be more attentive to the different conditions of various CS projects.
- For further information on this topic, we recommend reading the works of Haklay (2018), Rasmussen and Cooper (2019) and Rasmussen (2021).
-
- Video:
- Vignette:
Quiz for session 2
Useful resources
- Haklay, M. (2018). Participatory citizen science. In M. Haklay, S. Hecker, A. Bowser, Z. Makuch, J. Vogel & A. Bonn (Eds.), Citizen Science: Innovation in Open Science, Society and Policy (pp. 52–62). UCL Press.
- Rasmussen, L. M. (2021). Research Ethics in Citizen Science. In A. S. Iltis & D. MacKay (Eds.), The Oxford Handbook of Research Ethics. https://doi.org/10.1093/oxfordhb/9780190947750.013.36
- Rasmussen, L. M., & Cooper, C. (2019). Citizen Science Ethics. Citizen Science: Theory and Practice, 4(1), 5. http://doi.org/10.5334/cstp.235
Session 3
Research Ethics and Research Integrity in Citizen Science: Power balance
Objectives
- Be able to recognize the existence of power imbalances within citizen sciences projects
- Be able to understand the importance of recognizing the various expectations that people may have
- Be able to provide solutions for how to best address power imbalances within citizen science projects
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Expectations and characteristics of citizen scientists should be taken into account.
-
- Guideline #2
-
- Citizen science (CS) research should involve inclusive dialogue between professional researchers and citizen scientists.
- It is frequently noted that a range of power imbalances within CS projects may result in the exploitation and instrumentalisation of citizen scientists and in related tensions between professional researchers and citizen scientists (Tauginienė et al. 2021). Unlike professional researchers, citizen scientists do not necessarily have the same or appropriate motivations and academic backgrounds, nor are they necessarily paid for their contributions to a CS project on the same basis as are professional researchers or given any credit for their contributions (Resnik et al. 2015, Ward-Fear et al. 2020, Rasmussen 2021, Tauginienė et al. 2021; see Ethical Publishing).
- The fact that power imbalances of this sort exist within CS projects does not necessarily pose an ethical issue for citizen scientists. Some citizen scientists who choose to participate in CS might do so merely because they find it rewarding to engage in a scientific project, the specific project genuinely interests them or they believe that the project might help bring about change or influence various stakeholders, including professional researchers and policy-makers (regarding the latter, see Conflict of Interest). However, given these instances, there is a risk that professional researchers, either knowingly or accidentally, might sometimes exploit the goodwill of citizen scientists due to their different expectations about the CS project and its expected outputs (Resnik et al. 2015, Ward-Fear et al. 2020, Rasmussen 2021, Tauginienė et al. 2021). If citizen scientists do not feel that they are being treated fairly or with the type of respect owed to them as persons, this might jeopardise the CS project and undermine future collaboration (Ward-Fear et al. 2020). Additionally, inclusive language is paramount in ensuring smooth communication amongst professional researchers and citizen scientists, touching on matters of, for example, technological literacy, academic style and specific needs (Rasmussen 2021, Tauginienė et al. 2021). Hence, it is important that professional researchers take proactive responsibility, acting preventatively to avoid the risk of exploiting or instrumentalising citizen scientists participating in CS projects.
- Since CS projects differ, what represents an efficient number of citizen scientists per activity in a CS project should be considered. For example, in CS projects that involve a huge number of citizen scientists, it might be rather difficult to have smooth and inclusive dialogue, so structuring the activities and dividing citizen scientists into groups could be ways to ensure that their voices are heard.
- In addition, the expectations of citizen scientists play a paramount role in the power balance. As suggested by Resnik et al. (2015), several key questions should be considered: Why do the citizen scientists wish to contribute and what do they wish to gain from participating in the CS project? How do they wish to be credited and how do they wish to contribute to the CS project? How do they want the information about the CS project, as well as its data and results, to be disseminated? If the CS project results may bring benefits, how will the intellectual property rights concerning ownership of outputs (e.g. data, publications, patents and licensing) be handled? (see Intellectual Property). To ensure the evaluation and balancing of expectations, Eleta et al. (2019) proposed some solutions, for example, employing a facilitation model (i.e. establishing the role of facilitator in a CS project to enhance and support the collaborative link between professional scientists and citizen scientists) and relying strongly on principles of transparency and accountability when balancing the promises and expectations of the stakeholders. Recommended steps can be used as a guiding tool for designing an ethical CS project (see Eleta et al. 2019).
-
- Video:
- Vignette:
Quiz for session 3
Useful resources
- Chesser, S., Porter M. M., & Tuckett, A. G. (2020). Cultivating citizen science for all: ethical considerations for research projects involving diverse and marginalized populations. International Journal of Social Research Methodology, 23(5), 497–508. https://doi.org/10.1080/13645579.2019.1704355
- Groot, B., & Abma, T. (2022). Ethics framework for citizen science and public and patient participation in research. BMC Medical Ethics, 23, 23. https://doi.org/10.1186/s12910-022-00761-4
- Berkeley Lab, Science is Inclusive
Session 4
Research Ethics and Research Integrity in Citizen Science: Conflict of interest
Objectives
- Be able to recognise a conflict of interest
- Be able to explain how to avoid possible conflict of interest
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- All possible conflicts of interest should be disclosed and declared before the start of a CS project, during a CS project and/or afterwards.
- Professional researchers in any field of research may have financial, political or personal interests that sometimes conflict with their ethical and professional obligations as professional researchers (Shamoo and Resnik 2015). Such interests are potentially problematic as they might undermine objectivity and integrity in research. Meanwhile, in CS projects, conflicts of interest can refer to both professional researchers and citizen scientists. Depending on the nature of the CS project, citizen scientists may choose to participate out of curiosity, their commitment to a certain geographical area or because they want to learn more about the topic under investigation (Preece 2016, Rasmussen 2021). Citizen scientists might sometimes have a financial (e.g. have relationships with private, political or non-profit organisations sponsoring research) or non-financial (e.g. personal, political–ideological or environmental objectives) (Resnik et al. 2015, Roy and Edwards 2019) conflicts of interest due to lack of the knowledge and experience needed to properly address the ethical or legal issues in research (Emanuel et al. 2000).
- Although established research ethical regulations seek to prevent known or anticipated risks, it is frequently recognised that these regulations are not always suitable or sufficient for CS projects (Rasmussen 2019, Roy and Edwards 2019, Rasmussen 2021). Therefore, there is a need for a new regulatory framework addressing research integrity and preventing or dealing with unethical behaviour in CS projects. It is crucial that professional researchers take responsibility for implementing certain measures in order to prevent unethical behaviour in a CS project. Citizen scientists might sometimes lack the appropriate background and might need additional training in how to handle research data appropriately (see Data Management and Verification of Findings). The expectations and motivations of citizen scientists should be openly discussed and communicated; professional researchers should provide space for such discussion within the team (Shirk et al. 2012) and allow potential readers and/or end users of the research outcomes to make their own critical assessment (Resnik et al. 2015) and, in doing so, ensure public trust in CS projects.
- Professional researchers with conflicting interests might be less careful and critical in their analysis of the data. If such conflicts arise, it is crucial that professional researchers openly declare them in any related publication (Shirk et al. 2012). Failure to disclose a conflict of interest could undermine public trust in research (Resnik et al. 2015) and transparency.
-
- Video:
- Vignette:
Quiz for session 4
Useful resources
- Chesser, S., Porter M. M., & Tuckett, A. G. (2020). Cultivating citizen science for all: ethical considerations for research projects involving diverse and marginalized populations. International Journal of Social Research Methodology, 23(5), 497–508. https://doi.org/10.1080/13645579.2019.1704355
- How do peer reviewers manage conflicts of interest? University English Hub
- How to fix a conflict of interest for your journal paper University English Hub
Session 5
Research Ethics and Research Integrity in Citizen Science: Informed consent
Objectives
- Be able to identify research that needs informed consent
- Be able to recognize the criteria that are needed to formulate an informed consent form
- Be able to identify vulnerable groups and know what implies to them regarding informed consent
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Whenever CS projects involve humans as citizen scientists and research subjects, informed consent should be obtained.
-
- Guideline #2
-
- In CS research, the appropriate protection of vulnerable groups must be ensured. Citizen scientists should benefit from knowledge, practices or interventions.
-
- Guideline #3
-
- It should be seriously considered what type of consent best fits CS.
- When a CS project involves humans as research subjects, citizen scientists should, with few exceptions, be informed about the research and their participation and be free to choose whether to consent or decline to participate in it. This is crucial in order to show proper respect to research subjects and their right to self-determination (World Medical Association 2013) and it also relates to human rights (e.g. human rights and the protection of human beings are issues on which ethics screening and the assessment of European research projects should focus).
- Informed consent involves three criteria: the information criterion, voluntariness criterion and decision-making capacity criterion. In practice, this means that professional researchers should provide accurate and correct information to research subjects about what their participation involves, so that they can make an informed decision. This information should cover the aim and purpose of the study, research methodology, risks and benefits associated with participation, measures taken to protect their rights and integrity and the dissemination of results. The information provided should also be accessible and comprehensible to the research subjects (e.g. using appropriate style and avoiding technical terms). Research subjects should not experience any undue pressure or coercion (real or perceived) to participate. There should also be an opportunity for research subjects to opt out of participation. Valid informed consent requires that those consenting have the relevant capacity to make informed decisions – for example, small children or people with certain health conditions lack the relevant capacity (Shamoo and Resnik 2015). Following the Helsinki Declaration, research that involves these or other vulnerable groups should be performed with due care for the health and well-being of those individuals participating in the study; members of the vulnerable group should be involved only if they are likely to benefit from this research and if it cannot be carried out in a non-vulnerable group (World Medical Association 2013, Council for International Organizations of Medical Sciences 2016).
- CS projects may pose new and unique challenges when it comes to informed consent, since those participating in the research are not necessarily participating merely as research subjects, but also as co-researchers (Resnik et al. 2015, Tauginienė et al. 2021). In this case too, informed consent is required; however, different forms of consent need to be developed depending on the role of participants in a CS project. Acknowledging the networked structure of collaboration in CS and the fact that the choices of participants may evolve during the research process, dynamic informed consent has become a potential solution in CS projects (Eleta et al. 2019, Tauginienė et al. 2021). Dynamic informed consent allows each participant to select (e.g. via a GDPR-compliant online platform) what data s/he wants to provide and under what conditions (Eleta et al. 2019). However, such consent presumes repeated interaction and higher engagement requiring live iteration in order to maintain consent throughout the developing CS project (Tauginienė et al. 2021). Depending on the type of citizen involvement (e.g. see models of participation discussed by Shirk et al. 2012), it is advised to seriously consider what type of consent best fits a given CS project.
-
- Video:
- Vignette:
Quiz for session 5
Useful resources
- European Commission. (n.d.). Ethics review. https://ec.europa.eu/research/participants/docs/h2020-funding-guide/grants/from-evaluation-to-grant-signature/grant-preparation/ethics_review_en.htm
- Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data and repealing Directive 95/46/EC (General Data Protection Regulation) [GDPR]. https://eur-lex.europa.eu/eli/reg/2016/679/oj
- Science Animated, Participant Information and Informed Consent
Session 6
Research Ethics and Research Integrity in Citizen Science: Privacy and confidentiality
Objectives
- Be able to understand data collection issues and violations
- Be able to recognize data collection issues and violations
- Be able to identify personal data protection violations
- Be able to solve personal data protection violations
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Whenever a citizen science (CS) project involves humans as professional researchers or citizen scientists (active or passive providers of data), their privacy and confidentiality should be respected and assured.
-
- Guideline #2
-
- Professional researchers are obliged to inform citizen scientists of technical details concerning the collection and treatment of personal information.
- Privacy and confidentiality are amongst the key principles of research ethics whenever research involves humans as research subjects and/or citizen scientists. CS projects need to set up procedures securing the privacy and confidentiality of personal data and avoiding the violation of citizen scientists’ right to privacy. Although data privacy laws vary from country to country, they all require the protection of personal information (i.e. information that could allow the direct or indirect identification of a person). It is crucial that individuals’ data should be collected, saved and stored in such a way that there is no opportunity to identify research subjects at any stage of the project or research (See et al. 2016). Clavell (cited by Eleta et al. (2019), p. 4) proposed three solutions to avoid privacy and data protection problems in CS projects:
- (1) Create transparency, accountability and audit mechanisms, allowing others to verify that the stated policies are a clear reflection of actual data policies. (2) Determine what data can be released and under which conditions (anonymisation). (3) Require only minimal personal information about CS project participants, give sufficient notice of privacy options, provide users the option to hide some of their data and allow citizen users (i.e. research subjects) the possibility to modify and delete their data.
- It is advised to uphold the principle of data minimisation (see, for example, European Data Protection Supervisor (n.d.)) for both personal and research data, limiting data collection to what is relevant and necessary to fulfil the purposes of a CS project.
- Many ways to protect confidentiality can be used depending on the CS project design (e.g. encoding data, using pseudonyms or using anonymity in aggregate-only forms). In line with the General Data Protection Regulation, which focuses on data minimisation and protection, CS projects have to ensure that personal data and research data are kept separately. The storage of data has to be password protected (e.g. in institutional cloud storage and/or personalised institutional computers) and ensure limited access. Personal data should not be available to third parties. Potential privacy risks, terms of use of collected personal information and agreements about the timeline of the storage and erasure of the data during or after the CS project must be stated before the data collection process starts (Hecker et al. 2018b, Cooper et al. 2019).
- Professional researchers have to ensure that all citizen scientists are aware of the privacy and confidentiality details of the CS project and agree to the terms and conditions of the research (see Informed Consent). The level of confidentiality to which the citizen scientists agree is an important aspect of CS projects. The research subjects have to know if their personally-identifiable data will be held fully confidentially or not confidentially (e.g. in case the citizen scientists agree that their participation in the CS project will be publicly acknowledged; Cooper et al. 2019).
- Although scientific research as a default commonly presumes the (full) anonymity and confidentiality of data provided by research participants, there can be cases in which default settings might not be the desired solution or might even bring harm (e.g. participatory research on indigenous groups; Svalastog and Eriksson 2010). Therefore, it is suggested that CS projects should be careful about handling anonymity and confidentiality, rather than treating them as unquestioned norms.
- Privacy and confidentiality are also related to the use of technology (e.g. mobile devices) for data collection and analysis in CS projects. Bowser et al. (2014) noted that these technologies “may be designed without privacy in mind” (p. 70) and can cause privacy and confidentiality issues for both citizen scientists and professional researchers. According to Eleta et al. (2019), developers of technological innovations to be used in CS projects should consider involving citizen collaborators in co-designing privacy parameters and applying “Privacy by Design” principles, putting the privacy of users first (i.e. the default settings presume the most restrictive privacy options, but enable users to make choices about data sharing). Technology used in CS projects involves a risk of violating the privacy of third parties. It is paramount to know that professional researchers are obliged to inform citizen scientists involved in the CS project of what personal information may be collected, how it is to be shared and what actions should be taken to prevent or limit potential misuse (Cooper et al. 2019).
- Technology and privacy issues have been discussed by Bowser et al. (2014), who described the following scenario: A person with whom privacy issues have not been discussed may accidentally be captured in a photo during research. When the photo is linked to other information collected during the project and open access to it is provided, the situation may raise concerns about the privacy and confidentiality of identifiable personal data not only for the person in the photo, but also for the CS project team that did not ensure the privacy of this person. Such risks must be assessed in advance and according to procedures for dealing with privacy, which must be established (see Use of Technology).
- Professional researchers should also recall that children could sometimes participate in some CS projects as citizen scientists (e.g. using apps to monitor trees by taking pictures of them). In such cases, professional researchers should take age into consideration and ensure that children under the age of 13 years are safeguarded by parents or teachers, to prevent their personal information from being shared in CS projects (Bowser et al. 2014).
-
- Video:
- Vignette:
Quiz for session 6
Useful resources
- Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data and repealing Directive 95/46/EC (General Data Protection Regulation) [GDPR]. https://eur-lex.europa.eu/eli/reg/2016/679/oj
Session 7
Research Ethics and Research Integrity in Citizen Science: Use of technology
Objectives
- Be able to select a technological solution which has an optimal value trade between the usefulness and privacy
- Be able to distinguish technological solution which is not discriminating
- Be able to identify personal data (related also to the chapter Privacy and Confidentiality)
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Technical solutions that do not limit inclusiveness and are comprehensible and user friendly should be selected for citizen science (CS) projects.
-
- Guideline #2
-
- Professional researchers should ensure that all users are informed about the technological solutions used in the CS project and provided with proper technical support.
-
- Guideline #3
-
- Value trade-offs between usefulness and citizen scientists’ privacy should be considered in advance.
-
- Guideline #4
-
- The selected technical solutions should be transparent to citizen scientists.
- Advances in technology have enabled citizens to make even more substantial contributions to science as citizen scientists (Newman et al. 2012, Ceccaroni et al. 2019). Emerging technologies have influenced the scientific research process by streamlining data collection, improving data management, automating quality control and expediting communication (Newman et al. 2012, Brenton et al. 2018). There are many technologies that help people collect, store, process, share, visualise and analyse data generated by citizen scientists, technologies such as: IT-based platforms, tools and services; mobile technologies; and Internet-based technologies. All these tools and technologies have influenced CS and, as a result, revolutionised how citizens and communities can participate in research (Mazumdar et al. 2018). These technologies also support social interactions between the organisation of citizen scientists and professional researchers, as well as interactions between citizen scientists and their communities (Mazumdar et al. 2018).
- When using technology, it is important not only to focus on its benefits, but also to be aware of its potential risks (e.g. threats to privacy and inclusion) and to take actions to prevent them. The use of technology entails risks related to privacy, so proper data management is crucial (see Privacy and Confidentiality; Data Management and Verification of Findings).
- Before selecting a technical solution, inclusiveness and non-discrimination should be carefully considered. For example, the technology should not exclude prospective citizen scientists due to its high price and should not be too complicated for some groups of citizen scientists, such as elderly people (Pagliari 2020). This consideration is crucial, especially in CS projects where the involvement of disadvantaged groups is expected.
- Citizen scientists should be informed by professional researchers about the use of technology and provided with the necessary support and training. It is important to recall that the use of any application must be voluntary and with full user consent (Klar and Lanzerath 2020, Pagliari 2020). The users must be aware of potential risks (Klar and Lanzerath 2020) and they must be clearly informed of what data are collected, who will access the data, for how long they will be stored and so forth (Hargittai et al. 2020, Pagliari 2020). When selecting a technological solution, the value trade-off between the usefulness of the solution and citizens’ privacy should be considered. Therefore, if several technical solutions are available, preference should be given to the one that best preserves privacy and is the least intrusive (EDPB 2020, Pagliari 2020).
- Technical solutions should also be transparent. Open-source technical solutions increase credibility and enable independent auditing (Pagliari 2020). Citizen scientists who will be collecting the data and using the technology should be trained. Proper use of the chosen technical solution is important for the correctness of the data gathered, minimising possible data manipulation, falsification and fabrication (Pagliari 2020).
-
- Video:
- Vignette:
Quiz for session 7
Useful resources
- Chesser, S., Porter M. M., & Tuckett, A. G. (2020). Cultivating citizen science for all: ethical considerations for research projects involving diverse and marginalized populations. International Journal of Social Research Methodology, 23(5), 497–508. https://doi.org/10.1080/13645579.2019.1704355
Session 8
Research Ethics and Research Integrity in Citizen Science: Data Management and Verification of Findings
Objectives
- Be able to recognise improper data management
- Be able to explain about the importance of complying with the responsibilities
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Citizen scientists should receive appropriate training in data collection and the importance of keeping good research records.
-
- Guideline #2
-
- Appropriate methods for data validation should be implemented.
-
- Guideline #3
-
- Discussions amongst professional researchers and citizen scientists on questions pertaining to data ownership and future data accessibility should be facilitated.
- As in any other research, both professional researchers and citizen scientists in citizen science (CS) projects need to keep accurate records of the research data, research protocols and research methods used. As Shamoo and Resnik (2015) pointed out, good record-keeping practices (GRKPs) are important to ensure the quality and integrity of research. First, GRKPs enable one’s data to be used in tests or experiments, whose results will be properly analysed and written up in reports. Second, GRKPs are important to enable the replication of work by others, such as peer reviewers or other researchers outside the research team. Third, GRKPs are important to facilitate investigations into research misconduct and might even prevent research misconduct. Fourth, GRKPs are important for safeguarding data ownership and intellectual property rights (see Intellectual Property).
- A potential issue in any CS project is that the citizen scientists might lack appropriate or relevant training in proper data management and record keeping and, consequently, lack knowledge of these matters (Wiggins et al. 2011, Resnik et al. 2015, Rasmussen 2019, Rasmussen 2021). This might raise doubts as to whether CS projects can live up to the expectations of good research practice (for an illuminating discussion of this type of criticism of CS, see Elliot and Rosenberg 2019). However, even if some might remain sceptical of the results of CS on the grounds that citizen scientists might not have the same academic training as professional researchers, the relevant question is whether they have sufficient training to perform the tasks at hand (Elliot and Rosenberg 2019). In this context, it is the responsibility of professional researchers to ensure that citizen scientists, when recording or collecting data samples, are properly informed about how to conduct the assigned tasks and that they are educated about the importance of GRKPs.
- In addition to educating citizen scientists, Wiggins et al. (2011) identified several methods that can be used to validate data in CS projects, including expert review, photo submissions, paper data sheets submitted along with online entries and uniform equipment. Not all these strategies are equally suitable for all CS projects, so the preferred method for a CS project depends on the scale and nature of the project. However, to facilitate expert review, professional researchers who initiate the CS project also need to ensure that sufficient competence exists amongst the researchers supervising the participation of citizen scientists. This is important to ensure that the tasks of citizen scientists are being performed correctly (Resnik 2019).
- One of the key principles in research ethics is openness (Shamoo and Resnik 2015). Sharing data and results is essential to advance research, allow feedback and criticism, facilitate replication and build trusting relationships amongst professional researchers and between professional researchers and citizen scientists. Therefore, while there might be legitimate reasons to refuse to share one’s data or results, for example, for reasons of intellectual property or because the data have not yet been validated, the general norm is to share information and data (Shamoo and Resnik 2015). This holds also in CS. It is also important to note that citizen scientists should have a say in how their data are shared. As Resnik et al. (2015) pointed out, citizen scientists may assert ownership over the information and data that they are sharing and contributing to the CS project. This is not unreasonable: the data are theirs as much as they are the property of the professional researchers. It should also be noted that, depending on the nature of the CS project, citizen scientists might favour open data storage, in which case professional researchers should facilitate discussions amongst the citizen scientists of questions pertaining to data ownership and future data accessibility (Resnik et al. 2015) (see Intellectual Property).
-
- Video:
- Vignette:
Quiz for session 8
Useful resources
- Balázs, B., Mooney, P., Nováková, E., Bastin, L., & Jokar Arsanjani, J. (2021). Data Quality in Citizen Science. In V. Kohland, A. Land-Zandstra, L. Ceccaroni, R. Lemmens, J. Perelló, M. Ponti, R. Samson & K. Wagenknecht (Eds.), The Science of Citizen Science (pp.139–157). Springer. https://doi.org/10.1007/978-3-030-58278-4_8
- Leocadio, J. N., Ghilardi-Lopes, N. P., Koffler, S., Barbiéri, C., Francoy, T. M., Albertini, B., & Saraiva, A. M. (2021). Data Reliability in a Citizen Science Protocol for Monitoring Stingless Bees Flight Activity. Insects, 12, 766. https://doi.org/10.3390/insects12090766
Session 9
Research Ethics and Research Integrity in Citizen Science: Intellectual property
Objectives
- Be able to identify emerging issues in intellectual property (IP) rights in research activity when dealing with citizen science projects
- Be able to demonstrate compliance to IP set of principles and good practices in research design
- Be able to differentiate ethical practices related to IP for context-related circumstances
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- Both professional researchers and citizen scientists should adhere to intellectual property regulations in the country or countries where a citizen science (CS) project will be implemented.
-
- Guideline #2
-
- Professional researchers should ensure the respect and protection of intellectual property in line with a CS project’s needs.
-
- Guideline #3
-
- Professional researchers should discuss issues pertaining to data ownership and intellectual property with all researchers (both professional researchers and citizen scientists) before the CS project begins.
- The principles of intellectual property (IP) form a very complex system that affects the fields of literature, science, art, film and photography, computer programmes and much more. They are used to protect all creations, works of art, discoveries, trademarks and trade secrets and are applied through effective formal and informal tools, such as protective patents or copyrights (Bainbridge 2009).
- Both professional researchers and citizen scientists should understand at least the basic principles of IP and their implementation in practice. In this context, it is important to recognise that IP law and practice may differ between jurisdictions and that both professional researchers and citizen scientists have a responsibility to abide by the IP laws of the country or countries where a CS project will be implemented. It is necessary not only to know how to defend IP, but also to what extent one can work with someone’s IP. As Scassa and Chung (2015) pointed out, “the need to manage IP rights in citizen science may be less about ownership and control for the purposes of career advancement or commercial exploitation and more about appropriate management to serve a broader public interest” (p. 1).
- Issues concerning IP may sometimes arise in CS projects because citizen scientists may simply assert ownership over the information and data that they are sharing with and contributing to the CS project (Resnik et al. 2015). It is, therefore, crucial that both professional researchers and citizen scientists clearly discuss issues pertaining to data ownership and IP before the CS project starts. Resnik et al. (2015) further suggested that both professional researchers and citizen scientists should negotiate agreements for all stakeholders to uphold. In doing so, professional researchers should be aware of the power imbalances that might exist between professional researchers and citizen scientists within CS projects (see Power Balances).
- Citizen scientists often work on a volunteer basis, so their discoveries and outputs may be subject to different rights from those of professional researchers who are employed on a CS project. To avoid potential disputes, Guerrini et al. (2018) noted that CS projects often use Creative Commons licences, which help preserve copyrights, but still allow others to work with the outputs. The easiest way to deal with copyright issues is, once again, to establish the conditions of the rights at the beginning of the CS project (Kieslinger et al. 2018). Contracts can easily clarify expectations regarding involvement in a CS project and the handling of data, results and other outputs.
- Only copyright holders or their designated representatives can apply Creative Commons licences to a copyrighted work. If a CS project intends to apply for a Creative Commons licence, professional researchers should, as emphasised in the section on Power Imbalances, involve citizen scientists in inclusive dialogue regarding the ownership of the copyright (or permission) and the choice of the most suitable licence. Professional researchers should communicate the choice to the whole team and be sure to include the copyright notice in the work. It should be noted that selected licences cannot be revoked even if a citizen scientist decides not to share the material in the future.
-
- Video:
- Vignette:
Quiz for session 9
Useful resources
- Creative Commons. (n.d.) Choose a License - Creative Commons. https://creativecommons.org/choose/
- World Intellectual Property Organization – WIPO, Navigating Traditional Knowledge and Intellectual Property – The Adventures of the Yakuanoi
Session 10
Research Ethics and Research Integrity in Citizen Science: Ethical publishing
Objectives
- Be able to recognize ethical issues when publishing results of CS projects
- Be able to identify appropriate open access and legitimate research outlets
- Be able properly demonstrate contributors of CSs
Methods
Work in pairs, individual work, discussions, gamified cases
Timing
30 minutes
Materials
- Literature:
-
- Ozolinčiūtė E, Bülow W, Bjelobaba S, Gaižauskaitė I, Krásničan V, Dlabolová DH, Umbrasaitė J (2022) Guidelines for Research Ethics and Research Integrity in Citizen Science. Research Ideas and Outcomes 8: e97122. https://doi.org/10.3897/rio.8.e97122
-
- Guideline #1
-
- It should be ensured that both professional researchers and citizen scientists are properly acknowledged in research publications related to the citizen science (CS) project.
-
- Guideline #2
-
- It is recommended that research related to the CS project be published as open-access and in legitimate research outlets.
- Like the results of any other research, the results of CS projects will likely be published. This raises several questions related to scientific authorship, proper acknowledgement of citizen scientists and where and how to publish one’s results.
- As noted in relation to the above discussion of power balances in CS projects, professional researchers and citizen scientists may have different expectations about their participation in a CS project. For professional researchers, one expectation is authorship of research publications coming out of the CS project, as this is crucial for academic career advancement. In contrast, citizen scientists may not require, but would be eager to receive acknowledgement for their contributions. Resnik et al. (2015) pointed out that citizen scientists should be given appropriate credit as a way to ensure honesty and accountability in CS work, as well as to demonstrate gratitude to citizen scientists. Ward-Fear et al. (2020) noted that giving appropriate credit is also crucial in order to promote the future participation of citizen scientists in CS projects. Without appropriate credit, there is a risk that some citizen scientists might feel instrumentalised, exploited or both.
- There might be cases in which individual citizen scientists have contributed significantly to the research in the CS project and those citizen scientists should have the opportunity to be listed as authors (Resnik et al. 2015) and/or, if requested, be acknowledged in some other way.
- Given the nature of CS and its association with the democratisation of science and “Open Science” (Vohland and Göbel 2017, Hecker et al. 2018a), it is advisable to publish CS research outcomes in such a way that they are freely accessible to all who participated in the CS project. Many publishers keep research publications behind paywalls, making them accessible only to professional researchers with institutional affiliations that pay for access for their research personnel. If possible, it is advisable to aim at publishing CS results in open-access outlets, since this will allow citizen scientists to access the research publications and share them freely with others outside academia. It is also recommended, in line with the idea of the democratisation of science, to provide open access to other research outputs (e.g. research data and codes) whenever possible, considering the privacy and confidentiality of research subjects (see Privacy and Confidentiality).
- It is the responsibility of professional researchers to publish only with legitimate publishers. With the changing conditions of academic publishing and particularly following the launch of open-access publishing, there now exist fraudulent – i.e. predatory or fake – publishers. These actors publish scientific work merely for profit, but without any real concern for the quality or content of the work, although they present themselves as adhering to academic procedures, such as those associated with peer review. It is important to learn how to identify such actors to avoid publishing with them and to discourage others from doing so (see Eriksson and Helgesson 2017)
-
- Video:
- Vignette:
Quiz for session 10
Useful resources
- COPE (n.d.). Guidelines. https://publicationethics.org/guidance/Guidelines
- Science Europe (n.d.). Open Access. https://scienceeurope.org/our-priorities/open-access/
- Think. Check. Submit. (n.d.). Home • Think. Check. Submit. Https://thinkchecksubmit.org/resources/